Since 2008 I have been suffering from a strange disease of the blood and bone marrow called Myelodysplastic Syndrome (MDS). I have struggled with this illness which doctors confirm is rare and has no known cause, since 2008 when my blood cell counts began dropping. Though I have managed to stay on my feet up to May 2014, since then I have had to undergo regular blood transfusion to keep me going. I am now transfusion dependent and on average I need external blood every 7 days. In other words I survive on other people’s blood.
Having had both extensive and intensive medical checks with specialists in Uganda, South Africa, India, Kenya and back in Uganda again without finding a cause, the focus now is to find the proper treatment before I deteriorate further. The treatment is in 2 phases, phase 1 is to get me off regular blood transfusion. This will last 6 months from June 2015, costing USD 35,000 for 6 months. The 2nd phase which has to be undertaken abroad is the bone marrow transplant estimated to cost a minimum of USD 120,000 USD in medical bills and another about USD 50,000 for travel and extended stay abroad of up to 6 months after the procedure.
Am now facing a medical finance challenge in addition to the illness itself owing to the long standing nature (8 years) of the problem that has seen me in and out of hospitals quite often especially in the last 1 year (May 2014 – May 2015). This is the reason a group of friends have made some contributions and in addition appealed to the public in Uganda through the media to help me.
The purpose of this note is to confirm that:
- I am in dire need of financial assistance to cover my medical costs as outlined above;
- I have authorized friends of mine to help fund-raise for my medical costs using ethically acceptable means through their networks;
- Make a personal appeal to well-wishers and anybody or any institution that may be willing to help me financially or otherwise. I attach a summary of who I am and highlights of my contributions to my country Uganda and beyond. At 49, I believe once treated (doctors have assured me I have a 98% chance of complete cure with the bone marrow transplant) I can still serve my country and the global conservation fraternity.
Moses Wafula Mapesa Please donate via the Fundraiser